Lifestyle & Trends - Community

Nearly 1 in 10 Americans lives with a rare disease

Did you know that the same number of people die each year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And yet IPF, a rare and debilitating disease that causes permanent scarring of the lungs, is still relatively unknown.

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Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond

Getting a diagnosis is just the first of many challenges patients with rare diseases - and their caregivers - face.

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Cycling to help stop diabetes

Tour de Cure is a fun way to get out with your family, friends or co-workers and has routes designed for all riders - from 5-mile family rides to 100-mile century rides. It is a ride, not a race, so participants are encouraged to go at their own pace.

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Rare diseases: Increasing awareness for better patient outcomes

Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the journey to a correct diagnosis may take years, and once they receive an accurate diagnosis, it can be extremely difficult for these patients to find accurate information on their disease. One of the first things patients do is research everything they can about their illness, including connecting with someone who is also living with the disease, and learning their options for disease management and treatment.

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The career paths that lead to everyday acts of heroism

Often, we don't think about heroism until we see it in action - when disaster strikes and ordinary people exhibit extraordinary courage and compassion to help victims in their time of need. The truth is, however, that the best of human nature is on display every day in the lives of millions of Americans who work in public service jobs across the country. Sometimes all it takes to tap that inner hero is an opportunity - and the education - to serve others.

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